A CIDP Poem: She laughs.

Poetry

Dear Friend,

My dad has a rare chronic illness called CIDP.

What is CIDP?


It’s a chronic auto-immune disease: the body’s immune system attacks the nerves which deteriorates the muscles.

There is no cure.


To maintain his muscles, my dad has been receiving a treatment called IVIG, a transfusion of antibodies to suppress his immunity. To have this treatment, he has been going to the hospital once every month for more than a decade. On top of that, he takes medications including steroids to boost his muscles. If you know about Guillain-Barre syndrome, CIDP is the chronic version of it. You can read more about CIDP here.

Actually, my main character from Book B has this disease too. She suffers from not only CIDP, but also depression and grief. Last year, God led me to set the project aside as it was not the right time to work on its third draft. And guess what? That time may be coming soon.

As you may noticed in my Projects page, I’ve used the image of a sea turtle for Book B. A sea turtle actually represents people with CIDP. The disease slows down their limbs which liken one as a sea turtle swimming and pressing on.


So, getting to the purpose of the title of this post. Recently, I saw a writing prompt from this website and crafted this poem, using my main character with CIDP:


She laughs.

She laughs with her lips and pain in her limbs.
She laughs with her throat and pain in her gums.
She laughs with her chest and pain in her face.
She laughs with sorrow and pain in her heart.

She lost health.
She lost passion.
She lost friends.
She lost herself.

Why does she laugh?

She laughs because in her pain, she found healing.
She laughs because in her grief, she found joy.
She laughs because in darkness, she found hope.
She laughs because in her emptiness,
she found Christ overflowing.



Copyright © Clarissa Choo, 2021.



Very Sincerely Yours,
Clarissa Choo-Choo Train



~

Clarissa Choo is a vessel used for Christ’s glory. Although she has lived in four countries, Heaven is her only Home. She desires to sow His seeds and to serve third culture kids, teens, and writers. Besides writing, she loves to wash dishes, chop ingredients into smithereens, and record hymns on her piano. Peek into her Christian TCK Email Ministry or read more posts.

Diamonds 2021 for Chronically Ill Christians

Special Events

What is Diamonds 2021?

Diamonds is an annual online conference for chronically ill Christians. Millions of chronically ill people battle impossible trials every single day. But so many of them feel so alone. The speakers of Diamonds 2021 want them to know they aren’t — not by a long shot. The theme for Diamonds 2021 is Purpose in Affliction — all about our identity and worth in God, and how our illness can strengthen our relationship with Him.


When is Diamonds 2021?

Diamonds 2021 occurs the second to last weekend in January — from Friday the 22nd through Sunday the 24th. You can join live for free, and if you miss anything you will still be able to view the recorded version by purchasing the all-access pass.


Who is speaking at Diamonds 2021?

This year, we have twenty speakers from around the world, and each of these amazing people has a special message of hope and compassion to share with you out of their own experiences with long-term illness.


What does Diamonds 2021 cost?

Because we know that many chronically ill warriors face burdensome medical bills, and because our goal is to uplift instead of adding just one more thing, Diamonds 2021 is 100% free while it’s live. 

After that, you can purchase the all-access pass to gain lifetime access to the conference content along with some exclusive bonuses. 


Where is Diamonds 2021?

Diamonds 2021 is completely online. We know that traveling with an illness is difficult, so we want to bring this right to you — even if you’re in a hospital bed or are housebound. You can register for Diamonds 2020 for free here.

Stay tuned this week for a special guest post by a Diamonds speaker and best-selling author Angela R. Watts!


Very Sincerely Yours,
Clarissa Choo-Choo Train

P.S. Why am I supporting this conference when I don’t have chronic illness? Actually, my dad has a rare chronic illness called CIDP, an auto-immune disease. The body’s immune system attacks the nerves which deteriorates the muscles.

To maintain his muscles, my dad is receiving treatment IVIG, a transfusion of antibodies to suppress his immunity, every month on top of medications including steroids to boost his muscles. If you know about Guillain-Barre syndrome, CIDP is the chronic version of it. You can read more about CIDP here.



~

Clarissa Choo is a vessel used for Christ’s glory. Although she has lived in four countries, Heaven is her only Home. She desires to sow His seeds and to serve third culture kids, teens, and writers. Besides writing, she loves to wash dishes, chop ingredients into smithereens, and record hymns on her piano. Peek into her Christian TCK Email Ministry or read more posts.

Guest Post: Five Scripture Passages to Start the New Year

Guest Posts

Dear Friend,

I am excited to publish this post written by Sarah Susanna Rhomberg, one of my close writer friends. May it bless and encourage you as it did to me.



Five Scripture Passages to Start the New Year


For some people, the past year may have seemed long and dreary. Some may be looking forward to something new, something fresh. Some may be sad that it has come to an end. Others might fear starting another year all over again.

Every year, I am torn. Yes, I love the anticipation of the new, but equally, I am one to hold onto the past, to hold onto the old.

Here are five passages for the start of the year, for both you and myself. No matter if you can’t wait for the new year or if you’re starting it with fear, let these be reminders to you.


1) Isaiah 40:30-31


“Even the youths shall faint and be weary, and the young men shall utterly fall: But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.” (KJV)


For many, this past year was not an easy one. Many feel like they are tired and weary. They feel like they are stumbling and falling. But here’s the truth to hold onto: Those who put their hope in the God of the Bible will not grow tired or weary. They will not stumble and fall.

This passage in Isaiah is a great reminder to us to put our hope into the LORD, instead of trusting in the works of man.


2) Lamentations 3:22-23


“It is of the LORD’s mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness.” (KJV)


No matter the circumstances, God stays the same. His character stays the same. His love and His compassion do not waver. These are promises we have. In addition, this passage gives us another promise:

God’s mercies are new every morning. Try whispering that the moment you wake up. “New morning. New mercy.” What a good reminder for the new year!


3) Psalm 1:1-2


“Blessed is the man that walketh not in the counsel of the ungodly, nor standeth in the way of sinners, nor sitteth in the seat of the scornful. But his delight is in the law of the LORD; and in his law doth he meditate day and night.” (KJV)


I bet that one of the most common new year resolutions among Christians is to read the Bible more. But maybe that’s the wrong way to think. Maybe our goal should not be to read the Bible more, instead to shape our lives around the Bible. To, as the Psalmist says, meditate on it around the clock. Day and night.

Time to rewrite new year goals?


4) Galatians 1:10


“For do I now persuade men, or God? or do I seek to please men? for if I yet pleased men, I should not be the servant of Christ.” (KJV)


If you stand up for your faith, you will always have people dislike you. Maybe even hate you. Does that mean we should not stand for what we believe? The answer to that is a question from Galatians. Are you seeking the approval of man or of God?

May this be a reminder to us to live the new year boldly, fearing God… not man. 


5) Revelation 22:20


“He which testifieth these things saith, Surely I come quickly. Amen. Even so, come, Lord Jesus.” (KJV)


The great debate about when exactly Jesus will be coming back has been going on for about 2000 years. In reality, the exact time of his return is irrelevant – it shouldn’t matter to believers. The more relevant question is, “Are you ready?”

This year, let us live ready. Let us be prepared for Jesus’ return anytime. Let us live knowing we could be standing before our Maker soon. Because that’s what He promised. He will return soon.

~

Image by Sarah Susanna Rhomberg

Sarah Susanna Rhomberg is a teen, who lives in Europe and is fluent in both English and German. When not writing, you will often find her reading or working on the organization of a camp for children – always with a mug of herbal tea at hand. Sarah wants to live her life for Christ and writes to glorify Him. Connect with her through her email list here.



P.S. Sarah’s email list is about the Christian articles she wrote. I read many of them and found them truth-filled and edifying.